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ANN's
first acting president, Vicky, presides over the very first meeting of
the American Nystagmus Network. This was truly an awesome moment for ANN! |
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Sam, the conference registrar,
is manning the registration desk along with Jeff. Jeff handled all ANN
memberships and was also responsible for setting up and maintaining our
bank account. |
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Karen is the webmistress
for the ANN site and a co-moderator for the ANN E-Mail Discussion List. |
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Jennifer was a presenter
at the conference. She has CN and talked about her experiences growing
up with CN and also her recent experience working with Dr. Dell'Osso in
his CN research lab. |
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Jen gave an excellent presentation
on Low Vision Rehabilitation. She brought many examples of visual aids
and is seen here with a few of them. |
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Dr. Dell'Osso was the keynote
speaker at the conference. He gave an outstanding presentation on CN in
general, and he also provided free eye movement recordings for people with
CN. |
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Claire travelled to the
conference from the UK, where she works on the staff of the Nystagmus Network,
UK. She provided us with insight on how to get ANN started and also presented
a talk on two Nystagmus books. |
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Part of the first meeting
of the ANN Interim Board. Pictured are: Jeffrey, ANN E-Mail list moderator;
Laurie, conference organizer; Sean (NFKAS), manager of the snail mail address
and leader of the adult focus group. |
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More of the interim board
meeting participants. Pictured are: Vicky, acting president and ANN incorporator;
Alan, conference financial advisor and the person who filed for ANN's tax
exempt status; Laura, active board participant and designated recorder
for all meetings. |
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Ann and Sam at the first
ANN member meeting. |
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First ANN member meeting. |
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Alan and his wife Cindy
at the first ANN member meeting. |
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Sean (NFKAS) leads the adult
focus group. We discussed driving with Nystagmus and career impacts (including
interviews) of Nystagmus. |
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Some of the attendees of
the adult focus group. Pictured from left to right are: Kevin, Charla,
and George. |