ResourcesThe following collection of links may provide additional information for Nystagmus patients and parents of Nystagmus children.
For Parents & Schools- Information for Parents of School Children with Nystagmus
- IEP examples and education related links from the NOAH website
- Frequently Asked Questions
- The National Organization for Albinism and Hypopigmentation (NOAH) - Nystagmus often occurs with albinism, ocular albinism (OA), and oculocutaneous albinism (OCA).
- Summary of genetic inheritance including dominant, recessive, and x-linked. Credit: Guy's and St. Thomas' Hospital (NHS U.K.) The Achromatopsia Network - network for individuals and families who are affected by the rare inherited nystagmus related vision disorder achromatopsia.
- United Cerebral Palsy Association - Some individuals with CP may also have nystagmus.
- The National Multiple Sclerosis Society - Some individuals with MS may acquire nystagmus.
- Nystagmus Webcast from Akron Children's Hospital - Introduction to Eye Muscle Surgery: Expanding the Treatment for Nystagmus in Infancy and Childhood, September 8, 2011.
Low Vision Links
- Sightconnection.com - Various low vision aids.
- BiOptic Driving Network - Information on bioptic driving.
- The Low Vision Gateway - Information about low vision aids including magnifiers and bioptic lenses. Also contains a directory of low vision professionals.
- LOVNET, the Low-Vision Gateway "The Low Vision Gateway to the Internet is your starting point to the world's resources for vision loss, vision-impairment, blindness, low vision aids and low vision rehabilitation services."
- VisionAware - The Self Help Resource Center for Vision Loss"
- Computer Screen Magnifiers information
- Ocutech Low Vision Solutions - includes information on bioptics for low vision drivers
- Special Education web site - IDEA, IEPs, etc
- American Academy of Ophthalmology
- American Association for Pediatric Ophthalmology and Strabismus A "list of all full members of the American Association for Pediatric Ophthalmology and Strabismus. It includes members from the United States, Canada as well as international members. It is listed by geographical location in order of State, Province or Country. It may be selectively searched." This is a good way to search for an ophthalmologist near you.
- National Eye Institute
- Optometrist Network - Special needs for children
- LightHouse International
- Purchase the book Early Onset Nystagmus: A Parent's Guide or Wobbly Eyes from the UK Nystagmus Network site. These books have been extremely helpful to parents raising children with nystagmus. Books can be purchased with US dollars or English pounds.
- ANN's own Edie Glaser has written 2 new books on Nystagmus, one aimed at children and one for adults. with an introduction by Dr. Richard Hertle. Click on either book to go to her website. In addition, she provides an interesting and useful page of low vision resources among other topics.




